365 days

365 days ago I learned what ACC(agenesis of corpus callosum) meant. Since that day I was put in a place I never expected to be, but now, can't imagine being any place different.
Kissing Parker Ann good night tonight was very different from what it was a year ago. I am so grateful, and realize how blessed we are. I feel secure and at peace about her future. She is the happiest little girl. Her light, smile, and happiness is her gift she shares with all she meets.
At the end of this month, we have spent 16 weeks away from home attending Conductive Education intensive therapy. Last year Parker couldn't hardly track a toy with her eyes, little alone reach, roll, sit up, crawl, walk, talk, and follow simple instruction. I am over joyed to say hope lives in Parker. In her own way she is now doing all of these things. I find Parker's determination for life so admirable.
Clay and I are overwhelmed with gratitude to our Father in Heaven for the miracles and blessings that both of our children bring to our lives.  I know Vander is the big brother Parker Ann asked for. I am learning to celebrate the journey, it is just as perfectly imperfect as we are. Good and bad. I wouldn't change it. I am happy to know that no matter what happens in life, I have good company to experience it with. Thank you all family and friends for the love, prayers of hope, and support we have undeniably seen in our lives over this last year.
Love,

The Vrouw

Morning of the MRI one year ago. 

Practicing high kneeling and grip strength all while enjoying the little girl in the mirror.

At the Fredrick Mijer Gardens

Today marked the half way point for our spring session here at CLC. Parker is rockin it! She puts so much effort into every day she is generally pulling down hard Zzz's by the last ten minutes of class. Her happy go lucky attitude makes it easier to wake up each day and bring her back for more. Simple motor functions you and I don't even think about, is a great struggle Parker has to practice, practice, practice to gain mastery. CLC is helping better calculate movement and gain awareness of Parker's  body relative to the space and environment around her. I see emphasis on balance this session.  I am witnessing a maturity within my sweet girl  that is beyond her years. It's crazy. In her countenance I see that she knows the hard things are worth it. That's why we are here.
This week what stood out to me in progress was her ability to isolate and differentiate body moment. (Ex: whiling lying down, holding legs and one arm still, while other arm is responding to verbal cues for up and down movement. Or legs still and grounded, where out stretched arms are  brought to midline for clapping or clanking toys together). Given Parker's current skill set it is hard to quiet the body and refrain from involuntary movement. I have noticed it less this week.
Parker loves the social aspect of class. She loves the social accountability. When the teacher is looking for someone sitting straight, etc, "oh I see Parker sitting tall!" Thats the moment you see that little girl flash a proud smile that covers ear to ear. She may be a little bit of a show boat... There are two other little one year old  girls with  their moms that make up our class. I'm pretty sure we're the cutest Parent/Child class CLC has ever had!
I can see an improved stamina and trunk  strength in Parker this session. She is gaining the skills to practice standing  longer, walking  longer, and SITTING  UP longer. I am so happy that ever  elusive ability to sit up is now a reality with  great success. Prayers have gotten her here.  If Parker  maintains focus she can sit unsupported for one to two minutes. If she has her back support it can be more like 5 minutes. It has been so fun to watch a new world unfold as she sees it literally from a different angle. Coming into mobility is so fun!

-The Vrouw

The If/Then statement
 IF you would have told me a month and a half ago Parker would be able to pull her legs up underneath herself into the full crawling stance you may have gotten an odd laugh/cry combo out of me. I imagine my reaction would have made you feel uncomfortable and and pretty unsure what to do. haha. I think my reaction would take at least 30 seconds. A laugh would come out of me because I'm pretty sure One, I wouldn't have hardly believed you or known how to react to that kind of news. And Two, crawling is such a hard skill taking so much trunk control and strength which is one of Parker's greatest weaknesses. I have had times where I've wondered if light at the end of the crawling tunnel truly existed, or if since we have worked so hard already at crawling we now get the option to just skip crawling and go straight to walking because most days that almost seems like an easier skill for us to gain. I have known Parker will eventually crawl, but I never would have thought it would be here this soon.
 Having said that, the crying portion of my reaction... Everything Parker is learning to do is a miracle and blessing. I feel so blessed and grateful when the Lord lets me witness it. Sometimes its such a spiritual experience I sometimes feel like I can't believe I am here. I can't help but think of the feeling a parent has for a child when they want something so painfully bad for them, whether its an experience, skill, characteristic, or materialistic thing? Well that parental yearning is overwhelmingly complete when those little moments happen in my living room right before my eyes. The miracles I pray for every day I see happening when Parker pulls her legs completely underneath herself into the full crawling stance. The moment freezes me and I think, "this is REALLY happening right now." Its then a silent prayer of the heart in those times.  
It's crazy to think we are praying to be able to crawl! Four months ago we were praying to just track and then grab a toy. I can't believe this our experience. I sometimes feel selfish because I know there are those who are less fortunate and unable to have the experiences or opportunities to learn, and acquire skills in this life like Parker, or myself for that matter. It reminds me that beyond myself, there are those in heaven and on earth who are rooting in my family's behalf. It reminds me that there is a God, and He is aware of me, and the needs of me, and my children. It reminds me that I am enough to be the wife, and mother Heavenly Father wants me to be. Reminds us on a hard day to keep going. And so hey, sometime a little reminder never hurt anybody! #youareenough

-The Vrouw

12-11-2015

 

Parker loves walking

crawling to knock down the pins

Its potty time

The Ronald McDonald house hospitality was humbling

Santa even found us at the Ronald House

Wednesday marked the half way point of Parker's school. We finish a week from today. Things are going beyond what we expected. We are having so much fun, learning tons, and playing so hard. I am learning what Parker is doing, and what she is capable of doing, is nothing shy of miraculous.  Although therapy for three hours a day Monday through Friday  for a 1 year old is no easy task. Both of us girls have had our share of tears, wining, and times of frustration and exhaustion. When I am falling to anxiety and insecurities, I find the moments where I feel the faith, love, support, and prayers of others around me like a blanket of rejuvenation and hope. Like an added measure of love from the Savior.  Peace, knowing the Lord is aware of me and the little family I have stewardship to. Aware of the motherly mantle every mother frets to fill for her children.
I am so grateful for caring therapists who think about Parker beyond the moment we walk out their door.
This experience is one I would never trade. So blessed to have a mom and family who make the best cheerleaders!
-The Vrouw

Ready or not, Here comes Parker

First day of CLC school for the both of us.Woot! (Photo taken day after post)

We have arrived safe and sound at the McDonald house, and we are ready for our first big day of boot  camp tomorrow. Being a girl of little words, but many sounds, I can tell Parker  knows what we are here for, and she has definitely brought her game face! So excited and feeling so blessed!!! 
-the Vrouw 

11/26/2015 

Since learning about ACC has become part of our every day, I wanted to share  a reliable source of educational info about our Parker Ann and ACC. 

http://rarediseases.org/rare-diseases/agenesis-of-corpus-callosum/ 
-The Vrouw

Happy Birthday Parker

01/30/2014 It is 11 days before V turns one. I now understand the famous line parents always tell their 40 year old children, "It was like yesterday we brought you home from the hospital." Haha. It's hard to take in how fast this first year has come and gone. I'm not much for wearing feelings on my sleeve, especially when blogging, but I guess I will make an exception for this Shumway milestone. 
I am so grateful to have V a part of our lives. Life will forever be different. He has changed us. I think of the person I was before, and the person I am now, I can say I never would have made the changes on my own. No wonder motherhood is such a special, and endured experience. It is amazing to me how a child can take your heart, and take so much more from you in a single day. You know the days where you don't know the last time you showered. There you find yourself thinking you don't have anymore to give, then it happens. You get that sweet little smile, or that unexpected hug, slobbery kiss, or heart melting giggle. All of a sudden you find yourself overflowing with the receiving end of love, realizing your child is giving back to you so much more. I'm happy to know that all of the emotional ups and downs, diapers, spit up, crying, feedings, first steps, and first word is all shared with my sweetheart. I am so grateful that my sweetheart does beyond what he "has to." I know these are days to be cherished and gone before we know it. The love between father and son is special too. I see it in my boys. I am grateful for my boys making us a family. For truly because of them, I am Vrouw, and I am mom.  
-The grateful Vrouw

It's official...I'm a blogger! Hello World! Welcome to my world. I'm Dal, but at home I am known as The Vrouw. I'm somewhat curious and optimistic about my blogging experience, so once again welcome, and enjoy!

- The Vrouw