365 days

365 days ago I learned what ACC(agenesis of corpus callosum) meant. Since that day I was put in a place I never expected to be, but now, can't imagine being any place different.
Kissing Parker Ann good night tonight was very different from what it was a year ago. I am so grateful, and realize how blessed we are. I feel secure and at peace about her future. She is the happiest little girl. Her light, smile, and happiness is her gift she shares with all she meets.
At the end of this month, we have spent 16 weeks away from home attending Conductive Education intensive therapy. Last year Parker couldn't hardly track a toy with her eyes, little alone reach, roll, sit up, crawl, walk, talk, and follow simple instruction. I am over joyed to say hope lives in Parker. In her own way she is now doing all of these things. I find Parker's determination for life so admirable.
Clay and I are overwhelmed with gratitude to our Father in Heaven for the miracles and blessings that both of our children bring to our lives.  I know Vander is the big brother Parker Ann asked for. I am learning to celebrate the journey, it is just as perfectly imperfect as we are. Good and bad. I wouldn't change it. I am happy to know that no matter what happens in life, I have good company to experience it with. Thank you all family and friends for the love, prayers of hope, and support we have undeniably seen in our lives over this last year.
Love,

The Vrouw

Morning of the MRI one year ago. 

This picture was taken the last ten minutes of class on Friday afternoon. Parker played so hard the weekend couldn't wait ten more minutes. 

Shift, Lift, Step. Walking across the room.

First week of school... Huge CHECK mark for complete! Dancing in place and a big air fist bump for Team Shumway! Tuesday was Parker's first day back at school at Conductive Learning Center(CLC). CLC is the same program we attended in December, but this series will be four weeks instead of three. For Parker this week was a great jump start to waking up those neurons and diving into  the familiarity she has come to know and love in the music, and activities at CLC. The theme for this session is, "my very busy body." A line from one of the songs we sing says, "I have a very busy body, a very busy body, that goes everywhere with me...." Parker couldn't be more ready and thrilled with the theme choice. She loves finding her nose, using her hands to play peek-a-boo, and mom kissing and tickling her toes. Her modivation for calculated body  movement and drive to explore the world around her is like a drug to me that keeps me coming back for more pushing me  to do all  I can in her behalf. On top of that,  her joyful countenance and infectious smile sure makes ugly and stressful days, or anything for that matter, worth it. We are still implementing use of the potty from last session and seeing success there about once a day or every other day. She is a potty girl, She is so proud when she knows she's got the job done. Haha. The CLC director mentioned Wednesday that she could tell Parker has been playing hard since last session and she is making fantastic progress. She even went far enough to jokingly say with all of Parker's now obvious jibber jabber that she didn't have last session,  she is a regular trouble maker with all the talking and verbalizing during class. This is a happy time of life with Parker. The Lord has blessed us to have found a  routine that works for us  and embrace the  new normal we call ours. We are fortunate and blessed for the sweet association and support we feel from family and friends.

-The Vrouw 

The boys had left to the store so it was just Parker and me playing on the floor in the living room. Parker and I had been there a while mixing back and forth play with therapy. This particular session we had been playing extra hard with walking and crawling. Parker had been doing a great job, she was keeping motivated and wanted me to push her more. I could tell she was getting tired. In an effort to give her a break I sat her in my lap and began to sing to her to distract her from what she had been doing. The words that came out of my mouth had a very new, very real, and very literal meaning this time. My mind and soul processed them differently.

A I am a child of God,
And he has sent me here, ...Yes you are, and yes He did. We were told  a long time ago you would come.
Has given me an earthly home
With parents kind and dear. ...As your parent every day is hard, and it tests me. But I am trying my best because I love you.

 Chorus
Lead me, guide me, walk beside me,...Yes, yes, I  literally am. I am here. We are doing it right now. We will "shift, lift, step" our way to walking and beyond!
Help me find the way.... As long as you need it, I will always guide your little hands to open and close, or to find that little mouth with that spoon.
Teach me all that I must do. We are learning together, I think I am learning more from you. I see the joy in our journey. Its beautiful. Wow, I love you little sweet pea. I can't believe you are MY daughter. 
To live with him someday...You are that special. You'll make it baby, don't you worry.

-The Vrouw
"I am a child of God"
 Words: Naomi Ward Randall,
Music: Mildred Tanner Pettit,

06/11/2014