I tell you what it has been nice to be home and to have our suit cases unpacked AND put away, but even better than that is being able to apply what we learned at camp! It has been SO fun to be home to find our new routine and witness the little missy's improvement. The real application in our every day is there. I knew I wanted to go her camp to learn things and start things out on the right foot so to speak, but I didn't realize how much of a dive into a new lifestyle it truly was, and truly how happy and blessed we are with the shift.
For the few weeks we have been home we have had doctor appointments Parker passed with flying colors. The appointments were 3 month follow ups with audiology and neurology. Parker weighed in at 18.2. I was extremely grateful for the gain in weight. Three months ago she weight 16.5, and had zero weight gain. So so so happy to see the scale move a couple notches. Additionally she completed a blood draw for genetic testing. From the testing we are hoping to find out if ACC is genetic and if any of Parker's future siblings will or could have chances for the same brain malformation (this testing takes a long time and we won't get the results for this for approximately 2 months).
On a side note, we are pretty excited to announce we are heading back to camp in March. Parker is absorbing, learning, and doing so much right now Clay and I feel it is worth it to go back so soon. New brain paths are being created, and Parker is in that prime time age and stage for neuroplasitisty. We know we are so blessed to be able to be on this adventure with Parker, and are so grateful for cheerleaders in our lives who never stop rooting for Team Shumway.
-The Vrouw
No comments:
Post a Comment